I am back with a HUGE post of the latest update. My mom was here for 10 days offering us some much needed emotional support while begin to figure out our new life with SMA. It was wonderful having her here with us and I will be forever grateful that she braved the bitter cold weather to be with us. I don't think she will ever know how much it meant to have her here.
While my mom was here we mostly stuck to our normal routine (which isn't so normal because we are still trying to figure everything out). The biggest addition to our schedule is Evan's swim therapy. Lanny found a pool 10 minutes from our house that has warm water, which is what Evan needs because of his lack of muscle. Swim therapy is the BEST thing for SMA kids and he loves the water. He is starting to kick his legs and move his arms. We go three times a week and he is really becoming familiar with the pool. Today as it was getting close to when we end he started saying "Nani, Nani ... hot ta, hot ta" (translation: "Mommy, Mommy ... hot tub, hot tub"). As he is saying this he is pointing to the hot tub!
Daddy got to go with us one day.
While my mom was here some BIG things happened. The biggest yet, and hopefully the start of a better year, JUSTIN PASSED HIS EXAM!!!!!!!!!!!!!!!!!!!! Finally we are out of limbo and we will be able to actually afford Evan's SMA needs. This is a HUGE prayer answered for our family!
Evan is practicing for when he goes to Daddy's office.
Another blessing was the visit from my Grandpa. He had some geneological research to do in Calgary, and when he heard that my mom was coming up he decided it might be a good time to actually do the research. It was wonderful having both my Grandpa and my mom with us! We went to the military museam with Grandpa and the neatest thing happened. Grandpa was trying to sort out information on my Great Great Grandfather who fought in WWI. The man in charge of archives found all sorts of information for us, but then came back with something really special. In the whole museum they only have ONE surviving trench book and it includes my Great Great Grandfather's troup. Grandpa found way more than he expected and it made the trip that much better. Evan really took to his great-Grandpa, and I sure do love him!!!! Thank you for coming Grandpa!
On Saturday, after my Grandpa left Mom, and I went with my friend Kathy to a Farmer's Market that I had never been to before. Mom and I ate before we headed out ... what a mistake that was!!!! This market was HUGE and there were so many samples to try. We felt like we were going to explode by the time we got all the way through. One of our faves????? Mini Japanese Oranges .... mmmm good!!!
As most parents of toddlers know, they have the cutest little personalities and make the CUTEST faces to go along with it. This first picture is of Evan saying "cheeeese" for the camera ... adorable!
This next picture is priceless. Evan is a very sensitive boy and does NOT like being scolded. We happened to catch his face on camera which makes me laugh just as hard as when he makes it in person. When he is responding to the scolding all three of us (me, Justin, and my mom) had to cover our faces so he couldn't see us laughing ... just LOOK at him!
It was the saddest thing to say goodbye to my mom! Thank you mom for coming and being with us! We will always remember it!!!! Evan already misses his Grandma and still looks for you when I ask him where you are. (He also apologizes for not letting you sleep, and hopes that you are starting to catch up to where you were).
My mom and I both cried when we said goodbye and so I was so grateful that Kathy invited me to the space museum. I needed the distraction from leaving my mom! Boy is that museum a fun one! Here are some pics of our day there.
youngest man on the moon!!!!