The trickiest thing to deal with are those situations that need to be the way they are for whatever reason and to see Evan struggle with the fact that he can't do something. Its hard to even put it into words.
Last weekend we attended the Beavers family camp for Evan's Beaver troop. It was awesome and most of the things Evan could do. And then ... there was the ropes course.
I am a parent of a typical child as well and so I understand the need for a physical activity like a ropes course. While we were waiting in line Evan kept saying that he wanted to do the course by himself and it breaks my heart to tell him that this was something he couldn't do. I am strong, but the bigger Evan gets the harder these things are on my back and I need to start bowing out of some of these activities. It makes me sad to tell him that I am not able to do some of these things for him. I want to always give him what he needs and when I can't it breaks my heart.
Thankfully Evan has a rockstar Daddy. Justin is strong and fun. My children could NOT have a better Daddy. I don't have enough words to praise Justin properly for his skills as a father. Like all Daddy's he forgets to do things. The kids may or may not have matching socks (if they have socks at all), the wheelchair charger may not make it in the van, and so on, but his energy never stops. My children are so lucky to have him. Thank you for literally being THE BEST babe!