The SMA family that I'm a part of is chalk full of angels gracing this earth. From the kids who literally roll with the punches to their incredible parents who are warriors that care for them. Being with them all renews my soul and I am lifted up by their strength, despite the frailty of their bodies.
Enjoy these highlights from camp. Too bad we have to wait for a whole other year to go back!!!
This summer has given me some of the nicest weather I have ever had in this eskimo land and we have truly been living it up!!!!
this is a good example of how broad the spectrum of Spinal Muscular Atrophy is. Here are two 5 year old boys playing hockey. Both are affected by SMA.
the boy who never sleeps fell asleep in the middle of a water fight!!!
before the marshmallow war
my bike had hand pedals!!!
I defended my title well and am pleased to announce that I still reign as the champion mother in the obstacle course!!!