Monday, July 30, 2012

SMA camp

Oh how I love SMA family camp.  Having the opportunity to spend so much quality time in a circle where my life is normal is so awesome!  I almost feel like an SMA veteran now.  I know that might seem silly (Evan is only 5), but I feel like I've a pretty good grasp on what Evan needs and I feel like Justin and I have done pretty good getting those things in the order that they need to be got.  We aren't done meeting our goals of getting the equipment that he needs but we are doing alright and pushing forward.

The SMA family that I'm a part of is chalk full of angels gracing this earth.  From the kids who literally roll with the punches to their incredible parents who are warriors that care for them.  Being with them all renews my soul and I am lifted up by their strength, despite the frailty of their bodies.

Enjoy these highlights from camp.  Too bad we have to wait for a whole other year to go back!!!

This summer has given me some of the nicest weather I have ever had in this eskimo land and we have truly been living it up!!!!

this is a good example of how broad the spectrum of Spinal Muscular Atrophy is.  Here are two 5 year old boys playing hockey.  Both are affected by SMA. 


the boy who never sleeps fell asleep in the middle of a water fight!!!


before the marshmallow war
 

my bike had hand pedals!!!




I defended my title well and am pleased to announce that I still reign as the champion mother in the obstacle course!!!










3 comments:

Peter and Mandy said...

Oh my goodness what fun! Laughing over the the Justin in the pink wheelchair picture :) and Landon asleep during a water fight-so cute!

Tessa @ Lighting the World on Fire said...

so fabulous! and that last picture of is gorgeous

Alycia (Crowley Party) said...

Love the one of Justin in the pink chair :) so much fun! Love the marshmallow fight :) and now I am craving that ice cream again!