I feel terrible that I haven't blogged for so long!!! Normally I am not this bad. The problem is that most of the things I want to say I would like to post pictures to go along with it. I haven't downloaded any pictures and then it is night time and I forget. Hopefully I can get on the ball and do that tomorrow.
Something I do want to say is that lately I have been very weepy concerning Evan. As you know, to say that I am a VERY emotional person would be a bit of an understatement. I often get emotional when it comes to my kids.
We have become quite settled in our life with SMA, and we are happy! We deal with the crisis moments as they come and try to not let our minds wander too much around "the bad". Mostly I am fine but for about 2 weeks now there are some major fears (that I have had from day 1) that are always in my thoughts. There are many experiences in life that I don't want, but that I can handle (even if it is a lot of work and money), but there are some experiences that I just don't think I could make it through. The problem is that it is those trials that are very real possibilities in my life now.
Hopefully these thoughts will get pushed to the back of my subconscious again, and until then I will continue to cry often and hug and kiss my children the most I can.